Wednesday, March 29, 2023

Time: 11:00 AM-12:00 PM EST

This fireside chat between rare disease parents and paediatrician will delve into personal insights around accessibility for study participants who have a unique set of needs based on age and development. Speakers will explore nuanced issues, including what barriers they are seeing in clinical trial accessibility for paediatric rare disease patients and how those barriers might be addressed, mitigated, or solved for.


Firas Taha

Medical Director, Neurology, Medical Affairs, ICON plc


Jana Banesh

Director of Therapeutic Expertise, ICON plc

Sarita Edwards

CEO & President, The E.WE Foundation

Ryan Sheedy

Dad, Rare Disease Caregiver & Founder, mejo